1
Carry your LymphAware card
Your card shows that you are living with lymphoedema and includes your photograph, LymphAware ID and QR code.
LYMPHAWARE
Helping People Living with Lymphoedema Be Understood.
LymphAware is a patient-led identification system designed to help people living with lymphoedema communicate important information when they need support, assistance or understanding.
Your information. Your choice. Your control.
LymphAware Patient Profile
Shown when a valid card QR code is scanned
Patient-selected information
Only information chosen by the patient is displayed.
Clear assistance information
Designed to be easy to understand on a mobile phone.
Privacy by design
LymphAware is being developed around data minimisation
and patient control.
How LymphAware works
A simple physical card and a patient-controlled digital profile work together to make important information easier to communicate.
2
Someone scans the QR code
Scanning the QR code opens your LymphAware profile on their phone. They do not need an account or need to sign in.
3
They see what you choose to share
Your profile shows only the information you choose to share. You can review or change your choices through your LymphAware account.
Living with lymphoedema shouldn't mean having to explain it again and again.
Lymphoedema is not always well understood. In healthcare settings, emergencies, travel, workplaces and everyday situations, people may find themselves repeatedly having to explain their condition and the support or assistance they need.
LymphAware is being developed as a simple communication aid to help make that information easier to share through a physical identification card and patient-controlled digital profile.
A simple card that can speak for you.
The LymphAware card provides important information at a glance, while the QR-linked profile allows the patient to share additional information they have chosen to make available.
LymphAware is a communication aid. It does not provide a medical diagnosis or replace professional medical advice.
You decide what people can see.
You remain in control of what you choose to share through LymphAware.
Your information
LymphAware is designed to collect only the information needed to provide the service and support your LymphAware profile.
Your choice
You choose which information you want to make available through your QR-linked LymphAware profile.
Your control
You can preview what other people will see and manage your information through your secure LymphAware account.
Designed to support communication.
LymphAware helps make patient-selected information easier to understand when someone living with lymphoedema needs support, assistance or consideration.
For professionals and anyone providing support
A LymphAware card or QR-linked profile may help healthcare professionals, emergency services, carers, businesses and others understand important information the patient has chosen to share.
LymphAware is an additional communication aid. It does not replace professional assessment, clinical records or appropriate healthcare decision-making.
Created from lived experience.
LymphAware is being developed as a patient-led project shaped around the real communication challenges experienced by people living with lymphoedema.
The aim is simple: help people living with lymphoedema be better understood while keeping the patient in control of their information.
Privacy by design
Privacy and security are being considered throughout the design of LymphAware, with patient control and data minimisation at the heart of how the service is being developed.
Protecting personal information will remain an important part of LymphAware as the service develops.
Help shape the future of LymphAware
LymphAware is being developed towards a small initial patient pilot. The card, QR-linked profile and patient portal will be tested with people living with lymphoedema so their experience can help shape how LymphAware develops.
Register Your Interest